Posted by Linda D
on November 16, 2000 at 19:23:23:
In Reply to: New Yorker magazine prints slur of FMS posted by Anne-Marie on November 16, 2000 at 01:18:38:
: Nov. 13, 2000 issue of The New Yorker, starting on page 78
: "HURTING ALL OVER"
: "With so many people in so much pain, how could
: > fibromyalgia not be a disease?"
: > >
: > > (photo) A person with a cane is trying to leap across a *mind/body* bridge with a crack in it.
: > >
: > > Written by Jerome Groopman This article it is not on line. the article is negative and ignores research on many issued. Let me know if I can snail mail anyone a copy, I got the magazine from the library, made a copy so they are not perfect. It is a stinker.
: I will suggest a letter to the editor that you can improve on or ignore tomorrow. It makes me angry. There is a description of a patient a Mrs. Cortez that the author takes great pains to point out is from "mill town, (she is working class;) of Portuguese heritiage (so?) and was married to an illegal immigrant" AFter she is diagnosed by Dr. Goldenberg the author luanches an into the Bohr argument: "You give the disease a name it becomes part of a person's identity he cites PWA and cancer survivors" to wit. That in turn makes a person sick. The article is racist, classicist, and full of inconsistencies. According to Groopman, Dr. Wolfe has joined the opinions of Bohr,Rook and himself that we want to be sick. Although, Mrs. Cortez says "ofcourse I am depressed my life is a mess" a feeling that many of us can identify with, she never expresses a desire to live the way she is now. She like many of us would like to be well.
: It is almost seems that these doctors feel that if they can't cure it doesn't exist. This particularly seems to be true of Dr. Wolfe. The article also gives the stats that almost 6 million, 90 percent female and mostly Caucasian. other remarks ainclude the fact that the disease is antion concern, popping up in the newspapersmagazines and television with increasing regularity. pharmaceuticals are marketing us (what? I hope he is not referring to arthritis drug celebrex!) We have effectively lobbied congress and NIH is spending millions of dollars on research. (They spend more on protecting sand turtles for heavens sake.)The article is a clever mix of fact, fiction and innuendo. It's ultimate effect is unrelentingly negative.
: I do not believe any of the statistics are accurate. I have heard physicians say the disease may be affecting as many as 20 million; the actual number of men affected is hard to determine since many men do not care to go to the doctor unless they are 3/4 dead. I believe that minorities are undercounted.
: The article contains a particularly nasty quote from Dr. Rooks about recieving a call from a disability lawyer, asking "Does the patient have Fibromyalgia?" I know before I answer that if the patient doesn't now, he will soon."
: All of you who enjoy being poor, not being able to meet family responsibilities, and being in curled in a ball of pain, Raise your hand! Hey I can't see you! Oh no one raised their hand,
: Letters should include the writer's name, address, and daytime phone number
: "The Mail" - The New Yorker
: 4 Times Square
: New York, NY 10036
: FAX to: 212-286-5047
: EMAIL to: email@example.com
: Groopman's EMAIL: firstname.lastname@example.org
: WHO IS THE AUTHOR OF THIS ARTICLE
: Anyone watch "Gideon's Crossing"??? --- well, this new ABC medical series is based on some of the experiences of Dr. Groopman --- who holds the Dina and Raphael Recanati Chair of Medicine at the Harvard Medical School and is Chief of Experimental Medicine at the Beth Israel Deaconess Medical Center. He received his B.A. from Columbia College summa cum laude and his
: > > M.D. from Columbia College of Physicians and Surgeons in New York. In 1998, he became a staff writer in medicine and biology to The New Yorker.
: Letters should include the writer's name, address, and daytime
: > phone number
: > > to:
: > > "The Mail" - The New Yorker
: > > 4 Times Square
: > > New York, NY 10036
: > >
: > > FAX to: 212-286-5047
: > > EMAIL to: themail@n...
: > >
: > > Groopman's EMAIL: jerome@j...
: > > Groopman's website: www.jeromegroopman.com
I am not surprised at the article. There are still many doctors, nurses and everyday people who do not understand this problem that we have. They are closed-minded and unfair in their comments and remarks. If they were to "Suddenly" feel for just one day what we feel daily, I think their stories and remarks would change. If they think FM is an excuse to get out of work or something, I'ld say that anyone who could pretend the symptoms for months or years deserves an Oscar. It would take a hell of an actor to pull that off. I have come to the point in my life where I really don't care who believes me. I know how I feel, my doctor knows how I feel, and anyone who doesn't know how I feel are so very LUCKY!