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Posted by Al on December 09, 2000 at 16:18:30:

In Reply to: Desperatly need info regarding treatment and hope for the future! posted by MelJuliette on December 09, 2000 at 10:16:13:

: I have been suffering from severe, ongoing joint pain for the last few months and sleep disruption (seems like forever). Have been to an internist, ENT, neurologist, and now have an upcoming appt. with a rheumetologist. The general consensus is that it is fibromyalgia. Any advice before the rheum. appt. regarding best treatment, pain relief, or specific questions to ask would be appreciated. Many days it feels like I can't tolerate it for one more moment. It's debilitating and depressing. It's as though normal life is just slipping away. Is there anything hopeful in the future in terms of symptom management or resuming a quasi-normal life. Have been given Celebrex and Vioxx with negligible affect. Thanks for any and all input.
Dear friend: My heart goes out to you: when I first came down with Fibro, I was terrified and worn out being shuttled from one doc to the next in an HMO that moved with all the speed of a pregnant dinosaur. Make sure this rheum. really believes that Fibro is a physical problem, not a head trip. Also: is he/she willing to provide you with whatever pain meds you need: Celebrex and Vioxx are worthless for Fibro pain. I use Ultram for manageable pain, and Vicodin for breakthru pain...If yoour dr is stingy with the meds, get another dr. While Fibro can't be cured, it can be treated, and you will be better! My prayers are with you, Al awpcwp@cs.com

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