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Posted by ELLEN OQUENDO on December 10, 2000 at 21:03:32:

have had since 6/98 progression seems to be an everyday occuance looking for a group of professionals who are looking for a research subject i've reached the point where my bones and joints feel like there're in a vice and my muscles barely get me through a load of laundry and thats on medication 6times a day. started auqua therapy in an 88 degree pool and my muscles still cramped took days for the charley horse to go away i have 3 young childrem 12,10,3 someone please help maybe we can find a way to keep people from getting worse and fingdong a reason why on some people like me it doesn't stablize but it does get worse and it ain't pretty thanks, ellen oquendo

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