Posted by Al
on December 11, 2000 at 11:12:17:
In Reply to: Re: Desperatly need info regarding treatment and hope for the future! posted by MelJuliette on December 10, 2000 at 13:40:04:
: : : I have been suffering from severe, ongoing joint pain for the last few months and sleep disruption (seems like forever). Have been to an internist, ENT, neurologist, and now have an upcoming appt. with a rheumetologist. The general consensus is that it is fibromyalgia. Any advice before the rheum. appt. regarding best treatment, pain relief, or specific questions to ask would be appreciated. Many days it feels like I can't tolerate it for one more moment. It's debilitating and depressing. It's as though normal life is just slipping away. Is there anything hopeful in the future in terms of symptom management or resuming a quasi-normal life. Have been given Celebrex and Vioxx with negligible affect. Thanks for any and all input.
: : Dear friend: My heart goes out to you: when I first came down with Fibro, I was terrified and worn out being shuttled from one doc to the next in an HMO that moved with all the speed of a pregnant dinosaur. Make sure this rheum. really believes that Fibro is a physical problem, not a head trip. Also: is he/she willing to provide you with whatever pain meds you need: Celebrex and Vioxx are worthless for Fibro pain. I use Ultram for manageable pain, and Vicodin for breakthru pain...If yoour dr is stingy with the meds, get another dr. While Fibro can't be cured, it can be treated, and you will be better! My prayers are with you, Al firstname.lastname@example.org
: Thanks for your advice Al. I worry about what the future will be like. Are there times that are pain free or is this what it is to be from now on? It seems in such a short time, I've gone from a happy, active person to a depressed and debilated shell. If it's going to suck (excuse my language) then I need to know up front and it will be easier to deal with. I am hoping this rheum. appt. will be a positive thing for me, I've waited sooooo long for it!!! If this doctor is worthless, is there a way to "prescreen" other rheum's before waiting months for an appointment to gauge the doctor's thoughts regarding fibro? Thanks again for your kind words.
Hi again! Fibro hits people with varying degrees of severity, and often takes them thru a cycle of semi-remission, flare-up,etc. The majority of fibro folks can work, some with shortened hrs or less stressful work environment. I have met a good number of men and women with F and they are gutsy, adaptive, and getting on with their lives. You will too...if your mood stays flat too long, you may want to consider an anti-depression, since depr is often a result of F. If untreated, it can become a separate and hazardous problem: I know, I've been there! This isn't positive thinking BS--you will get better. Al