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Re: Tetrology of Fallot and Endocardial Cushion Defect

Re: Tetrology of Fallot and Endocardial Cushion Defect

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Posted by bob on August 14, 2000 at 23:23:40:

In Reply to: Tetrology of Fallot and Endocardial Cushion Defect posted by Tina on January 10, 2000 at 02:02:48:

: I have been researching TOF and ECD for the last 2 years, off and on, because my son died as a result
: of these 2 things. He was only 18 days old. I had several ultrasounds while I was pregnant and was told
: he was ok. At his 2 week checkup, I was told I had a healthy baby. 4 days later he died. He was some
: what pale the 2 last days, which I thought was due to him vomiting. I called a Dr. about it, I was out of
: state at the time, and he suggested the vomiting may have just been colic, and told me to give him Pedialite
: instead of nursing him till the vomiting stopped. He had not been blue, and we had no idea what was
: happening to him. At the ER, the Dr. who tried to revive him, said he had no idea why he died. We had
: to wait for the autopsy report and that took forever! Anyway, the point of my rambling, is I would like to hear
: from anyone who could shed some light on these defects. I am interseted in personal stories also.
: Thank you.
: hi! my name is bob. sorry to hear about your son, i was born with tof. i'm 35 y/o now and doing fine. i was not diagnos till i was 3 y/o and they didn't operate till i was 5y/o. i needed another operation when i was 10y/o and at the age of 15 iwas able to do anything i wanted. take care and sorry to hear about your son. i guess i was a lucky kid back then . my mother even reserved a grave site for me, because the doctors didn't think i was going to make it. take care and if you want to talk let me know. bye!


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