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Re: Infant heart problems

Re: Infant heart problems

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Posted by Laura Briggs on October 16, 2000 at 12:31:07:

In Reply to: Infant heart problems posted by Beth on September 26, 2000 at 14:54:55:

:Beth,
I am sorry to hear about Jacob's ordeal. My son was born with several heart defects. He has had several episodes of SVT and also some sinus bradycardia. He has had open heart surgery in FEb 2000 and is doing wonderful now.
I don't know where you live but if your son has a heart defect I strongly suggest you get him to a pediatric c ardiologist. They know much better how to treat him. And can also explain things for you to understadn better. You want to make them explain things until you CAN understand them. If you don't understand make them tell you in different ways so you know. You are the only one who make decisions for your son and need to have all the information. Heart defect are scary words at first but as you learn more about them, and that you are definitely not alone yuo will begin to feel better. It does get easier, believe it or not. I have a page and a support group for parents of children with congenital heart defects.
You can chekc it out at http://members.nbci.com/famswithhart there is a parent connect page where you can find other parents to talk with. If you tell me what state you are in I might be able to tell you where to find a support group in your area. Also, try www.tchin.org They have a lot of useful info there. Feel free to email me at haveheart@hercountry.com if you want to talk or ask questions. Please don't feel shy and no question is stupid.
My son has heterotaxy syndrome, common atrium (no walls between top two chambers), ventricular septal defect (VSD, hole between two bottom chambers),
pulmonary stenosis (narrowing of the valve to allow blod flow out of the heart to the lungs), bilateral superior vena cavae (two arteries to bring blood into the top of the heart from the upper body), interrupted inferior vena cava ( artery is stopped before the blood gets to the heart and runs through a vein up to a superior vena cava to go into the heart) and to top things off has no spleen, so he gets sick real easy.
He has had a heart catheterization, ekg's, echocardiograms, holter monitors for 24 hours, and open heart surgery.
Hope you get you answer soon and that Jacob is soon on the mend.
Laura



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