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Re: Hep C & Treatment

Re: Hep C & Treatment

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Posted by Eric on September 28, 2000 at 12:52:48:

In Reply to: Hep C & Treatment posted by Lynne on September 26, 2000 at 23:02:05:

Lynne, I would just like to concur that I too am or was being led to believe that 6 months to a 1 year of this horrible cocktail would rid me from the virus. Upon further investigation I am beginning to think complete and utter removal of this from my body may not be a possible. I took on this treatment thinking that Naomi Judd (a famous country singer), had been cured by using Interferon. So far no one has confirmed that as a fact. Several other high profile entertainers have been diagnosed with this but nothing has ever been published that they were cured. I visited this board to seek info and share my current condition with others who through whatever means had contracted this virus. My notification came via the mail when my blood was rejected during a 1992 blood bank donation put on by the Red Cross at my job. I too waited a long time to have the biopsy. When it was discovered that I had a slight sign of fribrosis, I was told this was my only recourse of action. Since then I have questioned that advice but still I continue the treatment. Today marks exactly 1 month since I began the drugs. I will visit my Doctor in 2 weeks. Hopefully he will have some good news pertaining to my blood work which I have been required to give up weekly. This time I will have lots of questions and will request my current level counts, past level counts plus the seriousness of my liver fibrosis. Good Luck!

: I was diagnosed with Hep C In Sept. 99. I had been told since 1991 that my liver enzymes were high. (I was infected 20 yrs. ago---had a tatoo when i was 16yrs. old) I had a liver biopsy in June. The biopsy has shown that I have fibrosis on a scale of 1-4, I am a 2.

: I would like to say that I am very disturbed at the posts that say there is no cure. I have 3 friends that have had no trace whatsoever of the virus in 3yrs after undergoing treatment. I have gone to meetings put on by Scripps Clinic, UCSD & info from Scherring Plough, books on Hep C, along with info from my Doctor that they have successfully cured the Hep C virus. The genotype's 2 & 3 are the most responsive to treatment (meaning the easiest to treat). I have genotype 3.

: There do remain individuals who are non responders & individuals where the treatment only keeps the virus at bay or slows down the progress.
: After 5 wks. (Now completed 7wks) of hell on the treatment my ALT level went from 188 at the start down to 31 (this is in the normal range 1st time since 1991). Unfortunately, I need to cont. the Rebetron combo therapy til Feb., the full 24Weeks recommended.

: I have been told, and after doing a tremendous amount of reading, that if my ALT level along with the viral load, mine started at 1,028,000, can remain in the normal range & the viral load 0, 6mos. after treatment then the Hep C is cured and the only way to get the virus is to get reinfected. So the struggle with the treatment makes it all worth that. (I have every side effect from trouble breathing, fatigue, hair thinning, fever, depression) But w/excellent results this quick, I will cont. the treatment.

: If you disagree with my statements regarding the cure of Hep C please respond and explain where you get your info. The updated #'s for response rate is no longer 20% it is now closer to %50-60% or as high as 80%. So please look at new test numbers & please don't discourage anyone from getting treatment. The advice about going to a gastrointerologist with experience with Hep C is excellent advice.
: Thanks,
: Lynne




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