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Re: email your congressman and newspapers
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Posted by Valerie Ross
on June 20, 2000 at 15:13:07:
In Reply to: email your congressman and newspapers posted by marion Walsh on February 25, 2000 at 20:15:25:
: There are 4 million of us walking around with hepatitis C. Not all know that they have it yet. We have got to get the message to the newspapers in each state we live in by writing to Letters to the editors in our local newspapers. If we can get to the young people to inform them that they should go to their doctors and ask them to give them an order for a hepatitis C test along with their normal blood work to find out if they have it, there are many that can be put in remission with the combo until a cure can be found. I called a couple HMOs in Florida and they said they pay for the test if the doctor orders it. The problem is getting the doctor to order it. There are so many doctors out there who do not know alot about hepatitis C. Not everyone that has hcv has any symptoms, if there is any ,it is being tired and perhaps muscle aches.We have to write to our state congressmen, senators, govenor and President making them realize how serious this virus is and asking them for their help in getting more funding for research for the cure of Hepatitis C. I can tell you from experience I had hepatitis C, I was lucky enough to get a liver transplant before I got liver cancer, but I still have HCV and it will gradually kill this liver if a cure is not found, so a liver transplant is not the final answer, a cure is. Write to those in authority, make our plight known .If we do not make these people aware of our problems they will not do anything. There is always something else more important. A sqwueaky wheel gets the oiling.
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