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| | Re: auto immune haemolytic anaemia
Re: auto immune haemolytic anaemia
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Posted by Leslie Chausse
on April 17, 2000 at 12:58:27:
In Reply to: Re: auto immune haemolytic anaemia posted by Paul Tiger on July 21, 1999 at 23:34:54:
: : : I would like to hear from anyone with this disease
: : : did you have a spleenectomy. ??
: : My friend has had a spleenectomy 5 years ago as a result of autoimmune hemolytic anemia and is doing well. She does not take any medication at
: : this point . She did mention that at that time she was given a vaccination against pneum
: : onia coccus . she had been told that she would need one every 6 years by an internist, however now
: : has been told by another internist that she did not need one ever again. Have you had the same
: : experience Theresa ?
My six year old daughter has suffered from autoimmune hemolytic anemia since she was nine months old.
Most of this time she has been on prednisone. She also takes 6mp. Last June,
her blood counts became normal. She was totally off prednisone. In November she ended
the 6 mp. Her blood count was normal at the end of February. Her coombs in January was 1+.
It had been 4+. Then two weeks ago she had a horrible recurrence. Steroids would not work. She had
to have a transfusion. Her hb. was 2.4. She is doing better now, back on steroids and 6mp but
they are strongly urging us to get a spleenectomy. I would like to hear from anyone who has had
a spleenectomy, especially children.
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