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Re: Pyroderma gangrenosum

Re: Pyroderma gangrenosum

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Posted by Jan on September 13, 2000 at 05:02:15:

In Reply to: Re: Pyroderma gangrenosum posted by Susan on July 11, 2000 at 21:04:58:

To anyone who has Pyroderma, there is a treatment for this that has worked for me. Have your doctor prescribe Remicade it is an infusion therapy used to treat Crohns disease.It prevents your body from making a protein that makes your body attack itself.It is very expensive, but insurance has covered it for me so far.Remicade is the brand name and I believe the drug is called "infliximab",it has been a miracle for me.It really works.First get to a very good gastroenterologist, even if you have not had gastro problems, because it is the underlying cause for pyroderma gangrenosum.Ihad pyroderma and now it is gone after two infusions of Remicade.Good luck to everyone and don't wait any longer.

: : My father has been fighting this disease for about 27 years. Only 2-3 yrs ago was he diagnosed with the pyroderma. The predinsone is the only thing that will clear it up. But taking the predisone for a long periode of time will cause osteoperosis, intestinal problems, and more. But if any of us had this disease we would rather deal with the side effects of the predisone than to go through the pain that the pyroderma puts our family members through. Feel free to e-mail me if you have any questions. I have done some research on this disease but I only have a little info. Good luck and you and your family are in my prayers.Jennifer

:
: Hey Jennifer and others:

: I was dignosed with pyroderma yesterday. I have had Crohn's Disease for 7 years and had my colon removed last year due to a severe bleeding flare-up of the Crohn's. I have had 3 flare ups of the pyroderma in less than 1 year and was only yesterday prescribed chromolyn to be dripped in my ulcer and Diprolene cream to apply to the edges of the ulcer. I hope it works, because I have taken enough prednisone to cure an elephant's crohn's. No more for me!





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