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Re: 4YR.OLD DAUGHTER WITH ITP

Re: 4YR.OLD DAUGHTER WITH ITP

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Posted by cathy on September 28, 2000 at 11:01:20:

In Reply to: Re: 4YR.OLD DAUGHTER WITH ITP posted by Megan on September 25, 2000 at 02:18:19:


: Hi Sheryl,

: I think the only thing I can offer you is hope. I am nearly 21 years old and also suffered from ITP as a child and withstood years and years of blood tests and hospital visits. I can now happily say that I am free of ITP from about the age of 7 if I remeber correctly.

: I do get sick often though with autoimmune diseases such as thyroid problems, glandular fever etc . .but I am one of the lucky ones. Best of luck to you, your family and your little girl, and may she grow to be as old and as cheeky as me.

: Just remeber .. no matter how dull the day . .the sun has to shine eventually.

: Love Megan

I have a 16 yr. old son who was diagnosed with chronic ITP since about age 7. Prednisone did not do much. Years and years of Dr. and blood tests. One of the factors was how other medicie mixed in his blood! Maybe check that out. Everytime he gets on a new medicine for whatever reason, within 30-60 days we have a blood test to see if the medicine negatively mixed into his bood and dropped his platelets. This is one wa we keep a handle on it. Foods, natural or otherwise do not seem to play a factor. Vitamins do not seem to play a factor. Unfortunately he is now presenting with "hurting knees". We have learned it is probably all the prednisone he was on. One treatment that worked well for him was winRho. I don't know if it is still available. Hold the surgery is all I suggest if there is something out there that can help.


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