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Re: I have cogan's syndrome! Please help!

Re: I have cogan's syndrome! Please help!

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Posted by Cindy on October 11, 2000 at 15:03:43:

In Reply to: I have cogan's syndrome! Please help! posted by KD on July 31, 2000 at 15:16:48:

: I was recenly diagnosed with Cogan's syndrome and was wondering if anyone knows what this is or knows
: of anyone who has it. It's a rare autoimmune disorder which affects the eyes, ears and balance. I am
: taking corticcosteroid drops which helped my eyes greatly but I have severe tinnitus and hearing loss
: which is not getting any better. Some days are worse than others and I am scared that I may lose my
: hearing completely! I was wondering is anyone knows of any treamtnet. My blood came back normal so they
: did not want to put me on any harsh drugs(I am only 28 years old!!). Please help!

-This is not Cogans Syndrome, Cogans Syndrome is Congenital Ocular Motor Apraxia...Cindy





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