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Re: Idiopathic Thrombocytopenic Purpura to Rolf & Kat

Re: Idiopathic Thrombocytopenic Purpura to Rolf & Kat

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Posted by kathy on December 22, 2000 at 12:42:03:

In Reply to: Re: Idiopathic Thrombocytopenic Purpura to Rolf & Kat posted by Chuck (Atlanta) on April 16, 1999 at 11:18:00:

: Hi Kat & Rolf,
: I haven't had any luck yet. I'm going to my favorite Herb shop and see what they can scrounge up for me on the Kami. They've been pretty interested in my ITP. It was a challenge for them. The reason I'm curious about Kami is because Pred., Decadron(dexameth), and Danazol didn't work. The WinRho was short lived. I'm in the grasping at straws stage. I've been using high doses of Vit. C and it at least seems to slow the destruction of platelets. I stopped Danazol 12 days ago with a 122k count. Monday, I have another CBC, so I'll find out then. My last WinRho with Vit. C sent my platelets to 528K from the 20k range. Before with WinRho and no Vit. C it just went to 138K. A connection maybe???
: Good luck on Friday Rolf. Kat, are you in Atlanta too?
: Take Care
: Chuck




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