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Flo, You are NOT crazy!

Flo, You are NOT crazy!

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Posted by Wendy on June 07, 2000 at 15:07:45:

In Reply to: Doctors would rather had you drugs or call you depressed(my symptoms) posted by Flo on May 31, 2000 at 18:26:47:

Flo!

You sound EXACTLY like me 4 months ago! I had the SAME EXACT thing, SAME EXACT problems and SAME EXACT ignorance from these stupid doctors. You are NOT crazy and it IS your ears. Your body can tell you alot and your ears is what's causing all of the dizzyness, the headaches, the full ears, and the anxiety. I know I have been down that road. Only 6 different doctors? Try 9. It took me 9 different doctors to find what the problem was and it is called EUSTACHIAN TUBE DYSFUNCTION. You will find an answer and you will get better. I promise. I felt the same way you did. You feel like your life has ended and you don't know what to do next. None of the doctors are helping you. Aw, I know. I know what you are going through. (as I shed tears on my keyboard) Don't give up.

My advice: I have been almost cured from this horrible condition, but it takes time and finding a doctor that is willing to go with it. Unfortunately there is no one good test to get for ETD. A tympanogram is the only one I know of and my first 2, were normal, like every other test I had run. The third, showed some possibility of a eustachian tube problem. Did you have one of these run yet?

The problem is that, the "classic" symptoms of ETD is not the symptoms that we are telling the doctors. I don't know about your condition, but my symptoms seemed to change from week to week. One week it would be more dizzyness than ears, next week I might have a headache but and mild dizzyness and the next week I might have painful ears... so these doctors are testing us, coming up with normal results and not having any concrete "classic" symptoms, they think it's in our head and send us home with valluim. Surprising enough, not many of them even knew what ETD was... That is our problem.

How long have you had this? I would love to talk to you more. Please e-mail me.

wendy222@jersey.net

Remember: All of your tests were normal. You are NOT dying and you WILL be find a cure and get to the bottom of all this. I actually for the first time in nine months, smoked cigarettes and drank beer again on Memorial Day Weekend. There is a cure for this, trust me. You will get your life back.

All my thoughts are with you...


Wiping the puddles of tears all over my keyboard,

Wendy

Anxious to hear from you


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