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Re: Swaying,Not Spinning!

Re: Swaying,Not Spinning!

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Posted by Caroline Johnson on August 09, 2000 at 08:07:22:

In Reply to: Re: Swaying,Not Spinning! posted by Paula Dickerson on January 13, 2000 at 20:01:29:

Like you I have similar syptoms and like Jim my neurologist believes that what I am dealing with is the onset of Mineare's Disease, I fully understand your view I am only 30 want a family and so on....

My neurologist has suggested the following:

Cuttting out all salt from my diet, which includes all prepackaged food, giving up smoking (if you smoke) as it is counterproductive to the blood flow within the ears, drinking a good amount of fluids. Avoiding all loud enviroments. Cutting out all caffeine, so no coffee, tea, coke, cutting out all chocolate, and a big trigger in Mineare's Disease is stress, so having stress management and the like.

Hope this is of some use to you, I have found that increasing my intake of water helps a little.


: : : My neurologist is pretty sure I have an vestibular disorder. I did have a vial infection right before the onset of my symptoms. I've always read that if there is a problem with the vestibular nerve, you would feel a true spinning sensation--one ENT told me that a swaying motion comes from the cerebellum.
: : : I am going on three years of this ride and have learned to live with it without any real answers. I am just 31 and want more out of life than this-my husband is great, but frustated just like me-we'd love to have children, but no way ,not like this.
: : : SYMPTOMS:Constant swaying,constant ringing in the ears, visual problems,balance problems(especially when I close my eyes-I fall backwards or to the right),facial numbness,right eye pain upon looking up that shoots a constant pain to the right occipital area of my head, headaches almost daily-sometimes migrain,right leg/sciatic pain,feet feel numb, neck pain, fatigue easily-mainly because my brain perception can't keep up with the motion of my body. I feel like I am still moving after any exercise or riding in the car, must lay down so my brain can catch up with my body or vise-versa, darkness makes balance much worse, and the floor feels tilted-WEIRD I KNOW, BUT IT IS REAL & CONSTANT. All tests come back normal and Chiari One Malformation & MS ruled out. Please respnd if any similarities-Thanks.
: : Did you have your Thyroid tested? I suffer from a minor case of Mineare's Disease but also am hypothyroid. Both were discovered within one month of each other in late summer. If you haven't had thyroid tested, iI would suggest you do. It can effect your entire metabolism, belive me it is scary. I wish you well.
: Jim H. Thanks for responding! Unfortunately, I've had my thyroid checked numerous times-including anti-thyroid and very specific panels-everything is o.k. Thanks again for the support.




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