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Re: nephroic sydrome with minimal chage disease

Re: nephroic sydrome with minimal chage disease

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Posted by Mick and Linda on July 19, 2000 at 00:14:40:

In Reply to: nephroic sydrome with minimal chage disease posted by Regina on June 28, 2000 at 18:18:37:

: I am looking for someone to talk with that has a kid with nephroic sydrome minimal chage disease. To talk with my four year old son has this disease and is having a very hard time with it. It has put me out of work,because he is sick with this alot. I would to talk with someone else who is going throw this. because this is a rare disease. I feel alone..


Our little girl has nephroic sydrome minimal change, she has had this for 2.5 years and has been in and out of remission, the most important thing is to get your son on some kind of agressive protacol using prelone solemederal and maybe cytoxin it all depends on how responsive ne is to oral prelone, if he responds that is great.





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