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Posted by Tracey
on July 20, 2000 at 15:16:47:
I have just recently found this site, and am new to the net.
I am looking for information on IGA Nethropathy, I was diagnosed with this just over 10-12 years ago. About 5 years ago I had a nephrectomy, but this was due to scarring from childhood infections, and I am sure, not IGA nethropathy.
I am not sure what the outlook is, I have never been on any medication, I have annual blood tests which have so far come back normal. I have had no problems for the whole 11 years since diagnosis, apart from the odd back pain. MSU's are always clear, and this pain is put down to muscle strain due to my job.
Is this common, or am I lucky to a certain extent. My consultant says he does not envisage me having any major problems. Should I be pushing for more information.
I would be grateful to hear anyones thoughts and comments.