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Re: nephroic sydrome with minimal chage disease

Re: nephroic sydrome with minimal chage disease

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Posted by Terrisa on October 08, 2000 at 22:55:39:

In Reply to: nephroic sydrome with minimal chage disease posted by Regina on June 28, 2000 at 18:18:37:

: I want you to know that you are not alone. My
8 year old son has had nephrotic syndrome for
about a year and a half now, He has had the kidney
biopsy and has been taking the steroids for about
as long. He has relapse after relapse and nothing
seems to be working. His doc's now have him on
a medication that it seems is worse than the disease itself,(cyclophosphamide) The side affects of this med is hair loss, blood in the urine, possible bladder cancer in the future, and possible bone cancer in the future, not to mention maybe sterilization. Does anyone out there

know or have any experience with this med? please
reply. I would like to know the future outlook
for my son.


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