| THIS MESSAGE BOARD IS NO LONGER ACTIVE.
TO SEE OUR ACTIVE MESSAGE BOARDS, PLEASE GO HERE |
| | Re: POLYCYTHEMIA VERA
Re: POLYCYTHEMIA VERA
[ Back to Messages
Posted by Pam W
on December 14, 2000 at 23:31:22:
In Reply to: Re: POLYCYTHEMIA VERA posted by Kathy Hart on August 07, 2000 at 18:40:56:
: : My son-in-law just found out that he has POLYCYTHEMIA VERA. What is the cure for this.
: : E-mail me at Collins@Leonce.com
: : Leonce
: My son was diagnosed at the age of 12ys. Roferon alfa-2a was the medicne he has been on sence. He is now 15, and doing great!!!!.
There is no known cure.(except bone marrow transplant) I was diagnosed 15 months ago. I suffered a heart attack 6 years earlier (at 37) which the doctors now attribute to the polycythemia.
It is very unusal for a women to have a heart attack that young. (My cholesterol level was only 178) Unfortunatly, it was not followed up as a clotting disorder
until my platelet level neared 1mil and my Hct. was 51%. I am now taking hydroxyurea and am closely followed. I hope to beat the "11 to 15 year" life expectantcy
after diagnosis, I still have one child at home and hope to see grandchildren some day. Good luck.
All times are GMT -7. The time now is 05:59 PM.
Site owned and operated by HealthBoards.comô
Do not copy or redistribute in any form!