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Re: POLYCYTHEMIA VERA

Re: POLYCYTHEMIA VERA

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Posted by Pam W on December 14, 2000 at 23:31:22:

In Reply to: Re: POLYCYTHEMIA VERA posted by Kathy Hart on August 07, 2000 at 18:40:56:

:
: : My son-in-law just found out that he has POLYCYTHEMIA VERA. What is the cure for this.
: : E-mail me at Collins@Leonce.com

: : Leonce

: My son was diagnosed at the age of 12ys. Roferon alfa-2a was the medicne he has been on sence. He is now 15, and doing great!!!!.

There is no known cure.(except bone marrow transplant) I was diagnosed 15 months ago. I suffered a heart attack 6 years earlier (at 37) which the doctors now attribute to the polycythemia.
It is very unusal for a women to have a heart attack that young. (My cholesterol level was only 178) Unfortunatly, it was not followed up as a clotting disorder
until my platelet level neared 1mil and my Hct. was 51%. I am now taking hydroxyurea and am closely followed. I hope to beat the "11 to 15 year" life expectantcy
after diagnosis, I still have one child at home and hope to see grandchildren some day. Good luck.




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