Posted by Jack Mikesell
on November 16, 1999 at 10:00:36:
In Reply to: need some thoughts on my disease please...... posted by Doug in Honolulu on October 05, 1999 at 23:26:59:
: Recently I had a Cardiac Catheterization, and during it they found my lung Blood Pressure to be 87. They had previousely performed a blood gas test and found my levels of oxygen very low, because my symptoms were very bad shortness of breath. After doing all the various lung tests, they had resorted to doing a Cardiac Cath.
: I've been diagnosed with Pulmonary Hypertension, they believe its Primary, they've scanned my legs for clots and are wanting to do a lung angiogram to make sure. My lung specialist at Straub Hospital here in Honolulu, say's that I should do the lung angiogram test, because all transplant facilities would require it to make sure its Primary and not secondary. The Radialogist who is doing the Angiogram says there are chances of suden death like .05 to .1 , but with the new dye their using the chances are even more remote, even with my high lung blood pressure.
: Does the info I'm recieving sound right ?
: Are there any medications that would lower the lung blood pressure w/o lowering the regular blood pressure ? My Dr. says there are but there being tested, but I would probably need to go to the mainland to be prescribed them at a center thats specializing in this disease.
: Oh BTW,
: I'm a 37 year old male, I've had the shortness of breath problem for about 1 1/2 to 2 years. I just finally was able to get health ins. a few months ago, so I got a late start on the diagnosis.
: I can walk slowly and not lose my breath to bad, but if I walk at a brisk pace I would be huffing and puffing after a couple hundred feet.
: I've had some fluid build up problems and was taking 40mg of Lasix per day, the Dr. upped it 80 mg. per day, and I've finally gotten all the excess fluid in my body out, she also has me taking a .5mg of monopril for my blood pressure, their trying to keep my blood pressure on the low side, right now its 98 over 52.
: What do ya'll think ?