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Posted by Bonnie in Texas on November 22, 1999 at 17:46:44:

In Reply to: Re: pulmonary fibrosis posted by NancyLee on November 08, 1999 at 10:06:26:

: I have pulmonary fibrosis and I'm waiting for a lung transplant. I am still working, I have a sedate job. There isn't much info on this. I was told that it was a relatively new diease (since 1940's). I'm on steriods, but they didn't help me.
: I've gone to Pul. Rehab. & that has helped my breathing. I've been doctoring about 3 or 4 years for this. If I can be of help let me know. I can let you know what I know. I don't know of any one that has this that I can talk to.

: Thanks
: : I was unaware that women could get pulmonary fibrosis. Did you find out any more information?

: : Thanks

: :
: : : : My mom has pulmonary fibrosis. She is 72. She is now on supplemental oxygen. How does this disease progress? Her doctor told us that she could live 2 years or 10 years. What can we expect to happen?

: : : Bonnie,
: : : My Mother ,who is 68 has just been diagnosed with pulmonary fibrosis. Like you I am full of questions. To my knowledge she was not given much imformation.
: : : Good luck,
: : : Tezon
Thanks to all who replied to my message. I haven't been on this website in a long while as I have been taking care of my mother. She suffered a compression fracture in her spine due to osteoporosis. We then found out that steroids can cause or can worsen osteoporosis. Neither one of her doctors had bothered to make sure that she was receiving supplementary calcium (she wasn't). I have since educated myself on the side-effects of steroids, and on pulmonary fibrosis. AND we have changed doctors. Mother has had a terrible time lately but is slowly improving. My advice to all of you is to EDUCATE YOURSELF, BECAUSE YOUR DOCTOR NEEDS YOU TO EDUCATE HIM!!! Let me know how you all are and thanks again for posting.

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