Posted by Christine
on May 31, 2000 at 14:04:14:
In Reply to: Re: SCIMITAR SYNDROME posted by JoAnn Burke on April 16, 2000 at 21:04:16:
my son was diagnosed with scimitar syndrome at 4 wks of age, underwent open heart sugery and right pneumonectomy at 6 wks of age. He is now 15 months old. He is doing quite well except for very SLOW to no weight gain (he's only gained 1.5 lbs in 8 months!) Please stop by Noah's Scimitar site at the link below, on the FAVORITE LINKS page, you will find a message board for families dealing with scimitar syndrome. I have located 13 families to date. Please stop by and tell your story.