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Connective Tissue Disorder

Connective Tissue Disorder

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Posted by kristin on November 24, 1999 at 13:06:09:

About three years ago I was diagnosed with Connective Tissue Disorder after a retinal surgeon found blood clots in the retina of both my eyes and sent me to a rheumatologist. After bombarding my body with steroids, and taking more blood tests than I care to remember, I was found to have an incredibly high ANA count, although they couldn't definatively state that I had lupus. In the course of transitioning me off the steroids I experience a grand mal seizure (on a ski slope, no less). I still continue to have numerous problems with the clots in my eyes and the problems go into phases of remission, so to speak. I've been on some chemo drugs for a while, but have been off all medication for about a year and half. One of the doctors that I've seen indicated that he felt there was a strong possibility that I would one day be diagnosed with lupus. Other than periodic blood tests, does anyone have any suggestions on what things (symptoms) I should be looking for that need to be reported to my doctors?



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