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Re: Website Helps Others Understand "Invisible" Disabilities Like Lupus, MS, Lyme, Chronic Fatigue & More!

Re: Website Helps Others Understand "Invisible" Disabilities Like Lupus, MS, Lyme, Chronic Fatigue & More!

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Posted by Gayle Pellegrini on December 31, 1999 at 17:57:28:

In Reply to: Website Helps Others Understand "Invisible" Disabilities Like Lupus, MS, Lyme, Chronic Fatigue & More! posted by IDA on August 27, 1999 at 17:37:23:

: Do you often hear the dreaded, "but you LOOK good" comment? Do you get frustrated, because it seems like people don't understand your illness, since to them "you don't LOOK sick?"

: Many times, our loved ones do not understand our illness or limitation, because they cannot "SEE" it on the outside. They think, that because we do not LOOK disabled, that we cannot BE disabled by our illness.

: The Invisible Disabilities Advocate offers a place where loved ones can learn about chronic, debilitating illness. There are pamphlets and a booklet which can be handed out to friends and family, so they can better understand what you are going through, need and feel!

: This website also provides a message board and hundreds of links!

: Come visit me soon!

: The Invisible Disabilities Advocate: http://www.orci.com/~invisible

: "Helpful Hints" Booklet: http://www.orci.com/~invisible/booklet.htm

: IDA's message board: http://www.insidetheweb.com/mbs.cgi/mb284563

: Sincerely,

: IDA


I have finally come up with a reply I can use when people tell me how "unsick" I look! I tell them "Yes, well that's because I work REALLY hard at looking better than I feel!" I am going to check out your websites -- thanks.

Gayle a.k.a. "Jiminy"



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