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Re: Discoid Lupus

Re: Discoid Lupus

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Posted by Diane Fedrizzi on January 01, 2000 at 15:27:23:

In Reply to: Re: Discoid Lupus posted by Tina Ellenburg on November 30, 1999 at 22:48:03:

I agree with Tina. I have both lupus's I have dicoid lupus and systemic. I do suffer from the joint pain and I am undergoing treatments right now with a rheuatologist-dermatologist-opthamologist and othropedist. Unfortuneatley our illnesss doesn't stop with just our skin. I have found a sunscreen which is great. It is made by Westwood-squibb and is called PRE SUN spf30. The following that Tina has posted is also right. Research is the best tool to this illness. the more your ead the more you learn. because there could be ten of us sitting in a room and none of us can have the same things..we can all expereience different or the same symptoms. Not always do we share the same. That is why this illness is so hard to detect in many people. WE just ahve to stick together and help each other.
Diane
: With discoid lupus you can have arthritis symptoms such as sore joints, the skin lesions can happen all over your body, itching skin, headaches, fatigue that just doesn't go away.
: Only about a 20% chance of discoid turning into systemic---it is pretty rare for this to happen.
: You are probably allergic to everything--soap, makeup, colognes and perfumes, clothing, just everything. You need to stay out of the sun and I don't know about you but I am allergic to every sun screen I have ever tried. A lot of the symptoms for systemic can be experienced by discoid.
: Contact the site for The Lupus Foundationa of America for really good information at:
: www.lupus.org/topics/lupus/
: I wish you best wishes and good luck. If you would like to correspond with a person like yourself and a nurse too just e mail me. I always need new friends. Tina Ellenburg tina@amaonline.com




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