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Re: Lupus Nephritis

Re: Lupus Nephritis

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Posted by Conrad on August 12, 2000 at 23:43:43:

In Reply to: Lupus Nephritis posted by Jenny on January 15, 2000 at 21:08:08:

: My 38 year old husband has Lupus Nephritis. We moved to be near his parents in SW Florida and cannot find ANY treatment here! Any suggestions?

My 49 year old husband was diagnosed with lupus nephritis at age 36.
He had been in a remission for years, and was removed from all lupus-related drugs ( plaquenill/steroids). His blood/urine work in April 2000, showed him in lupus remission. Sometime in the beginning of May, he began taking an over-the -counter supplement, Glucosamine Chordroitin for joint pain relief. He experienced a sudden and serious lupus nephritis flare up by the end of June 2000. He has been hospitalized July 3rd-8th, undergone Cytoxan chemotherapy July 26th (he is projected to have 5 more treatments), and ended up critically ill in the ICCU since August 6th with septic poisoning and a whith a white blood count of .4. He is due to be released tomorrosw, August 13th. He still suffers from impaired kidney involvement, and it will be a long road to recovery. I want to issue a red flag to all lupus nephritis sufferers: Glucosamine Chordroitin has a make up high in potassium salts, and excess potassium impairs kidney function (his July 3rd bloodtests indicated a potassium excess). He almost died in July after a lengthy lupus remission with NORMAL kidney function. I'm sure this supplement was the trigger for his flareup.

Evelyn


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