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Re: LUPUS,HORMONES AND ENDOMETRIOSIS

Re: LUPUS,HORMONES AND ENDOMETRIOSIS

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Posted by Roxanne on September 17, 2000 at 20:14:38:

In Reply to: Re: LUPUS,HORMONES AND ENDOMETRIOSIS posted by Karen on September 06, 2000 at 23:54:58:

: : HELLO I'M NEW TO THE BOARD, MY NAME IS TAMMY AND I'M 34. I'VE HAD LUPUS FOR 14 YRS. I'VE BEEN HAVING PROBLEMS WITH IRREGULAR PERIODS AND THE DRS DIDN'T WANT TO DO ANYTHING ABOUT IT BECAUSE OF MY MEDS (PREDNISONE). I FINALLY FOUND A GYNE THAT WOULD HELP AND SHE DID A ULTRASOUND THAT SHOWED CYST ON MY OVARIES AND FIBROIDS THROUGHOUT MY OTHER ORGANS. SHE THEN DECIDED TO DO A D&C AND A LAPROSCOPY, WHICH THEN SHOWED NO CYST, BUT ENDOMETRIOSIS, NOT SURE ABOUT THE FIBROIDS AS I JUST HAD THE SURGERY AND HAVEN'T GOTTEN ALL THE RESULTS BACK YET. I GO NEXT WEEK. I KNOW SHE TALKED ABOUT HORMONE THERAPY, LUPRON AND ALSO A HYSTERECTOMY. FROM WHAT I UNDERSTAND I THOUGHT HORMONES PLAYED A BIG PART ON FLARES AND SHOULDN'T BE TAKING THEM. ALSO I HAVEN'T HEARD TO MANY GOOD THINGS ABOUT LUPRON. I HAVE ENOUGH PROBS AND TAKING IT WOULD JUST CAUSE MORE, I THINK. I NEED SOME HELP AND SOME ADVICE ON THIS SUBJECT, SO WHEN I GO TO THE DOCS NEXT WEEK I KNOW WHAT I AM TALKING ABOUT. I'M SCARED TO TAKE HORMONES, BECAUSE OF MY LUPUS. AND I'M KIND OF YOUNG, I FEEL TO HAVE A HYSTERECTOMY. I DO HAVE 3 CHILDREN AND DO NOT PLAN ON HAVING ANYMORE. I JUST NEED SOME HELP AT TRYING TO DECIDE THE BEST WAY TO GO. IF ANYONE OUT THERE CAN HELP OR OFFER ANY ADVICE ON WHERE I CAN FIND INFO REGARDING MY ISSUES, I WOULD GREATLY APPRECIATE IT. THANK YOU. TAMMY

:
: I am 44 and was diagnosed 8 years ago, I did have the hysterectomy and refused the HRT due to the same
: questions you have on the hormones and LUPUS. I take tamoxifen to assist in the issues of Osteoporosis.
: I have been in a remission from Lupus for over 5 years. I take Predinisone only when I see a flare or infection coming on.
: For more discussion email me at eqw@bellsouth.net

Hi, Tammy,
You can call me Rox, if you wish.
As you know everyone is so very, very different. I am 42 yrs. old and was diagnosed with endometriosis the year of 1984; had around 13 or surgeries, because I thought one day I would have a family (I have no children); had numerous laparoscopyies and a laparotomy; in 1990 when the doctor was using thelaser on my bowel, he perforated my bowl; to make a long story shorter, I got an infection on my bowl requiring additional drainage and, henceforth, another laparoscopy (I was 31 at the time, but had my 32 B-D in the hospital. You see, I almost lost my life. I've been on Lupron and you name it - then I've most likely have been on med. It is a very, very, very important to really think about having surgery. Do some reserch, go to councelling, a supportive husband, family, friends, etc. are so critically important for what you are going through and what you will be going through in the future.
In 1997 I was diagnosed with Systemic Lupus; was terminated from my job of 9 yrs. on 1/1/2000.
I was recently diagnosed with early menopause. My intuition told me something was wrong 1-1/2 yrs. ago --- I went from my primary doc. back to my gyne. then back again to the other, until one had a light bulb turned on and gave me a blood test. Another doctor I am seeing for evaluation of my meds told me she isn't surprised I went into early menopause as I am taking a lot of meds that affect my pituarary gland (I have had such a rough time. I am learning so much but chronic pain sucks. On March 9, 2000 I had back surgery Lumbar 4 to Sacrum 1 -- hardware in my back will remain forever)for severe spondololithesis & Sondylosis, degeneration of my spine (Spinal Stenosis). Doctors do not want to treat me for meds and have been passing me off to my primary physician who cannot handle all of my chronic illnesses. So at this time, I am without pain medication. I only get Ibuprophen for my Lupus, endometriosis(have lots of abdominal adhesions).I had an "endometrial ablsion & myomectomy" in March,1996. I am high risk for surgery, but I was bleeding daily; Nothing else worked so I had the operation. Therefore, I am on the lowest dose of HRT and also low dose of provera. I have no more nausea & vomiting (went through this for a long, long time) and I do not perspire like I use to do (Oh my goodnes, my boyfriend didn't know what to think of this. :) I am watched closing and I watch closing over myself. My Lupus has not gotten worse-"The disease of a thousand faces.)Nasty, nasty stuff.
There are lots of diagnoses I have and wish you the best. (Don't want to bore you.) I cannot give you answers or advise you, but hope some of my story help in some way. Be strong through your journey in life. Research, ask question after question. If you forget (or forgot the answer to the question you asked :)== ask the question again. It your life, your body, your family. Get another opinion, and another. I have done this and received 3 different answers. I was happy with my 3rd opionion. If I said something goofy, I apologize in advance, my mind, concentration and thought process sucks at times. :)
Bless you sweetie, and my prayers are with you.



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