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Re: 24F JUST GOT POSITIVE BLOOD TEST 4 LUPUS......SCARED
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Posted by Kathy
on September 25, 2000 at 13:42:12:
In Reply to: 24F JUST GOT POSITIVE BLOOD TEST 4 LUPUS......SCARED posted by KAREN on September 17, 2000 at 18:48:06:
: HI...IM A 24F WHO GOT BLOOD RESULTS THE OTHER DAY...DOC SAID LUPUS TEST WAS POSITIVE........WELL.....I WAS GIVEN PAIN MEDS..THATS IT!!!!!!!! I HAVE BAD BAD JOINT PAIN AND FATIGUE...THATS WHY SHE TESTED......WELL WHAT THE ELL DO I DO ABOUT THE LUPUS!!!!!! IM SCARED!!!!!!! WITH NO ANSEWERS!!!!!! SHE SAID SINCE I DONT HAVE THE RASH YET THEN SHE CANT TECHNICLLY SAY I HAVE LUPUS....WHAT????????????!!!!!!!!!!!!!! PLEASE HELP IM VERY SCARED........ALSO FYI I HAVE MITRAL VALVE PROLAPSE, DUODENITIS, AND IRRITABLE BOWEL SYNDROME, AS WELL AS OSTEOARTHRITIS IN SPINE........YEAH GREAT HEALTH FOR A 24YR OLD I KNOW.....IT IS SO DEPRESSING....FEEL FREE TO EMAIL ME AT HOME PLEASE AT KIANA@A-ZNET.COM THANK YOU!!!!!!! KAREN
Hi Karen, My name is Kathy and I have been living with Lupus since I was 21. I am now 27. It is real scary not knowing what it is or how it will effect your life. You have had health problems in the past it seems so at least your kind of prepared on how to deal with something you have NO control over. I have SLE which efects your organs. Mine effected my kidney. I was born with only one and yep it got that one pretty darn fast too. I had blood work done in Aug. of 1994 and everything was fine. By Nov. 1 1994 I was in the hospital with Kidney failure. As you probably know by now it is an auto immune diseas where your body attacks itself. There are a lot of great meds out there that will help. I don't know why your doctor won't say its Lupus with out the rash. I didn't really ever have a rash. The blood work and your symptoms should do the job at telling her what it is. Is this your Primary Care Doctor that is telling your this? If so you need to go to a Rheumatoidoligist.Boy did I mess the spelling of that on that one up. If you'd like to talk you can email me at Whtezmb@aol.com.
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