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Re: Seeking Advice-Lupus & No Insurance!

Re: Seeking Advice-Lupus & No Insurance!

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Posted by AK Lupus on November 14, 2000 at 01:54:42:

In Reply to: Seeking Advice-Lupus & No Insurance! posted by Sue Glusica on January 18, 2000 at 23:33:57:

: I would like to become welcome here. I have many questions, and I don't know anyone with Lupus who can talk to me.I have no idea how this chat thing works, so please help me along!!I am 35 years old. I have known about this condition for at least 7 years.I am currently in alot of pain every day in my hips and back.I am a mother of 2 gorls,ages 15 and 6.I am married and I live in Flint MICH. I guess thats about it. Bye and Thanks!!!

I went thru this a few years ago and I think it will help others going thru this situation which is having lupus and no insurance, esp. when you need medications on a routine basis and they cost so much. I sent a letter to my state representative in the legislature as well as my congressmen in washington d.c. Thru them, I was able to receive all my medications: anti-nauasea meds, pain meds, pain patches, prednisone, calcium, and other meds without any cost from me. All pharmaceutical companies have a program to help those who cannot afford to buy the medicine they need. Just write to the Public Relations Dept. of any pharmacy company. Just the pain patches (fentenyl) were approx. $900.00/month!!!! But, with the help of my legislator, congresspeople, and my doctor, I was able to receive all my medications without cost. The pharmaceutical company will send pain (narcotic) medications to your primary health provider (many cities have "free" or sliding fee scale clinics and they can be your primary health provider if you do not have one) and in turn, they will give it to you. For prednisone and other non-narcotic medications, they company sent it directly to me. I hope this information helps others out there who cannot afford the medicine we need so much.


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