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Posted by Cheryl on February 06, 2000 at 09:40:16:


The Issue:
The New York State Department of Health has told patients in letters that it will prosecute doctors to enforce a standard of treatment for Lyme Disease that is limited to a three week regimen of antibiotics.

"The office of professional medical conduct is often faced with the challenge of identifying legitimate , recognized and authoritative opinions in medicine regarding the diagnosis, evaluation and treatment of a variety of medical conditions. We have had similar experiences with other diseases. In these instances, the office relies heavily on recognized independent medical expert opinion to assist in formulating what are the accepted standards of practice and care to best protect the patient-public. It is reasonable to apply this investigative strategy for patients with either Lyme disease or its presumed diagnosis.
In the case if Lyme disease, the Centers for Disease Control, American Lyme Disease Foundation, Medical Letter, and a host of other sources have provided guidance for the standard care of Lyme disease. Rarely, if ever, have these published guidelines indicated that anything more than two-three weeks of antibiotics are required to cure Lyme disease."

The community of Lyme patients in New York and across the nation is outraged at the intentional blindness of this position. The position of OPMC reverberates across the country as they have announced their plan to charge Dr. Joseph Burrascano with misconduct. Dr. Burrascano is the author of the Lyme protocol published in Conn' Current Therapy, a prestigious medical practice guide not mentioned by the department in their letter. Dr. Burrascano refutes the theory of the easily killed spirochete. That theory holds that any symptoms lingering after treatment are auto-immune disfunction and not treatable using antibiotics.

Too many Lyme patients experience debilitating and frightening symptoms long after initial treatment. His protocol is based on outcomes with hundreds of patients that show dramatic improvement of their conditions resulting from long-term oral and IV antibiotic treatment. That points to continued infection not auto-immune dysfunction. And, this debate only scratches the surface of the deeply divisive battle taking place in the scientific community over Lyme disease.

The anger of the patients is raised by the health department using its police power to (wrongly) choose sides in a bona-fide scientific dispute over the lives of the patients who suffer.

Dr. Burrascano's patients and Lyme patients across the country using his protocol are finally being lifted from the suffering of this spreading infection. The prosecution of him and other doctors using his and similar protocols is absurd and abusive to the citizens who aren't going to stand for it.

FAIM is lobbying in Albany, in concert with New York LYMEPAC which is holding meetings in lawmaker's district offices. More news will follow.

The Campaign:

Please write original letters. Tell your story and why this matters to you. Your personal words are valued more than a hundred form letters. Snail mail is prefered but use email if you must. At this time, please focus on the following lawmakers:

Hon. Joseph Bruno
Senate Majority Leader
Room 909 LOB
Albany, NY 12247

Hon. Michael A.L. Balboni
New York Senate
( Part of Nassau District)
Room 803 LOB
Albany, NY 12247

James J. Lack
New York Senate
(Part of Suffolk District)
Room 413 State Capitol
Albany, NY 12247

Roy M. Goodman
New York State Senate
(Part of New York District)
Room 913 LOB
Albany, NY 12247

Hon. Kemp Hannon
Chairman Senate Health Committee
Room 609 LOB
Albany, NY 12247

Hon. Richard Gottfried
Chairman Assembly Health Committee
Room 822 LOB
Albany, NY 12248

Hon. Sam Colman
New York Assembly
(He authored the 1994 NYS alt med law)
Room 939 LOB
Albany, NY 12248

Hon. Joel Miller D.D.S.
New York Assembly
Room 531 LOB
Albany, NY 12248

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