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To Lyme

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Posted by Nancy on October 18, 2000 at 20:03:26:

In Reply to: Re: Follow up lyme test. Is it likely to be negative? posted by lyme on October 16, 2000 at 22:31:14:

: : The initial 21 days of Amoxy was given in mid June.
: : Her pediatrician agreed to given her another test and said it would be Wester Blot.

: If the initial antibody response was negated by the short term treatment, she may never test
: positive. Lyme has to be a clinical diagnosis, not based on test results. If Western Blot is
: done, request all bands be reported. Some people will not test positive but will show
: significant bands for LD. That alone should be diagnostic for LD.

: : Does the length of time between tests matter and is 4 months long enough?

: 4 months is plenty of time if she did develop antibodies to the Lyme bacteria, Bb. But " if" is
: the $54 million question.

: Educate yourself on LD, learn everything you can so you can discuss the disease intelligently
: with the pediatrician. If the dr refuses, time for a new one. Remember- Drs perform a service
: and if they don't deliver, fire them and move on. Your daughter's life is at stake over this.
: I doubt you would be concerned if she wasn't displaying symptoms or abnormal (for her)
: behaviors.
: Good luck!

Thanks for the info! My daughters pediatrician said she will do whatever I want. She took blood yesterday and is sending it to Stonybrook (which all lyme docs recommend in this area). She is requesting the bands and is doing Western Blot and Elisa. I feel very lucky to have a pediatrician willing to do whatever it takes. Because of your advice, I knew what to ask for and was able to get specifics off the internet.

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