It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Message Board
THIS MESSAGE BOARD IS NO LONGER ACTIVE. TO SEE OUR ACTIVE MESSAGE BOARDS, PLEASE GO HERE





Re: MS & Devic's syndrome

Re: MS & Devic's syndrome

[ Back to Messages ]

Message

Posted by Julia on June 29, 2000 at 21:19:28:

In Reply to: Re: MS & Devic's syndrome posted by Jonathan on April 11, 2000 at 13:10:42:

: : My neurologist has put me into the probable ms catagory. he has also mentioned something called
: : Devic's syndrome (neuromyelitis optica). This affects the optic nerve and spinal cord. Help, has anyone
: : heard of this.

:
: I am new to this board, but also was recently diagnosed with Devic's. I don't think the diagnosis is final, from what I have read, it may require further testing (I asked my neuro about yet another MRI and a 2nd spinal tap). My neuro is among the best in the SF Bay Area, but did not know a lot about treating Devic's. She referred to two other experts she knew who recommended corticosteroids with a "steroid sparing agent." For the agent she is recomjmending methotrexate, which is mentioned elsewhere on these boards. I am mulling over this course of treatment.

: She also faxed me an article which is somewhat informative. It is written somewhat in medicalese but can be read reasonably by a layperson. It is called "Neuromyelitis Optica (Devic's Disease) and its Relationship to MS" in the International MS Journal, Vol. 6, No. 3. The authors are Pambakian, Akdal, and Kennard. Be prepared for a shocker in this article. It states a 35-50% mortality rate for Devic's, without stating a timeframe or anything. Aside from being sloppy science, it is difficult for someone like me or you to read. I am looking into this also.

: Please e-mail me. I'd love to trade notes with you. We can both get through this.

Jonathan, My mother has ms and was recently diagnosed with possible devic's disease if u could e-mail me any info about it i would greatly appreciate it.... I can't seem to find out anything about it..... I hope this message finds u well... God Bless and please e-mail me thanks!



Follow Ups




All times are GMT -7. The time now is 01:48 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!