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Posted by kat
on October 13, 2000 at 13:12:40:
i just feel the need to vent. i am finding out i am like alot of other people out there who have all the signs
but have no diagnosis. because we have normal mri's and lp's we are not sick . well i for one am tired
of this. this non-disease i have has caused 4 separate bouts of ON in 17 mo. because of this i am no
longer able to focus, therefore i can't read but maybe 15 minutes at a time. i used to read afternoons on
end. i am also unable to take hot bathes or showers, or even be out in the sun for any length of time
i also have trouble with balance and there are mornings i can hardly hold the dryer long enough to dry
my hair. i thank God daily this is not a life threatening thing, and i never get ill with God, but the drs are
another matter. if this were 25 yrs ago, people like me would be diagnosed. doctors WAKE UP
there is medication out there to help. we should be entitled to it as well. sorry this was so long.
THANKS for listening
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