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Posted by Jeanetta
on October 14, 2000 at 18:57:11:
In Reply to: Re: frustration posted by Joann on October 13, 2000 at 22:40:26:
: : i just feel the need to vent. i am finding out i am like alot of other people out there who have all the signs
: : but have no diagnosis. because we have normal mri's and lp's we are not sick . well i for one am tired
: : of this. this non-disease i have has caused 4 separate bouts of ON in 17 mo. because of this i am no
: : longer able to focus, therefore i can't read but maybe 15 minutes at a time. i used to read afternoons on
: : end. i am also unable to take hot bathes or showers, or even be out in the sun for any length of time
: : i also have trouble with balance and there are mornings i can hardly hold the dryer long enough to dry
: : my hair. i thank God daily this is not a life threatening thing, and i never get ill with God, but the drs are
: : another matter. if this were 25 yrs ago, people like me would be diagnosed. doctors WAKE UP
: : there is medication out there to help. we should be entitled to it as well. sorry this was so long.
: : THANKS for listening
: I know exactly how you feel! I am so tired of hearing its anxiety or depression. I made it 46 years without any problems with depression or anxiety and I don't have any now. I went to the neuro opthamoligist yesterday and after a lot of pressure from me he finally said my optic nerve problem could be a sign of ms! He even said that maybe my neuroligst could start me on one of the abc drugs. I see him next Thursday, will post the outcome.
Have either or your doctors mentioned wanting to do a Lumbar Puncture? That helped in my husbands final diagnoses. It was stressful but the neuro finally got what he wanted. Husband was diagnosed 1 month ago and now is on disability. He went for 2 years undiagnosed. Good luck I can only imagine your frustration.
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