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| | Re: mytonic muscular dystrophy
Re: mytonic muscular dystrophy
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Posted by Susan McGady
on August 01, 2000 at 12:42:57:
In Reply to: Re: mytonic muscular dystrophy posted by betsy cox on January 27, 2000 at 22:47:57:
: I also have myotonic md and need to talk to others who have the same and what they have done to stop it where it is, exercise, etc.
: : We have mytonic md. Alan has known for around 8 yrs now and is 47. He is still fairly moblie but unable to work. Tire's easiely and try'sto use a bipap machine at night with no luck. Would sure like to hear from others for support and exchange information.
: i have two uncles that have been diagnosed with this. now my sister and i are worried we might have this. it is supposed to be passed from father to daughter. and daughter to sons, have you heard anything about this. my oldesy son have some of the systems we have. we need to learn more about this.
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