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Re: mytonia congenita.
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Posted by Kerry
on September 05, 2000 at 16:58:49:
In Reply to: Re: mytonia congenita. posted by clive on July 05, 2000 at 06:19:48:
I would like to hear from anyone who has Mytonia Congenita, I have never met anyone else with this condition.
I was diagnosed as a toddler, and have not seen a doctor for many years so am not on any medication. I have extremely large leg muscles which I try to hide. I find that I have to be careful when I sneeze otherwise my chest muscles seize up-very painful! I also fall a lot because I don't have the reactions to stop myself, and when I do fall people rush to help but don't understand that I need time for my muscles to 'catch up' before I can move again.
Please email me if you wish to correspond further about how MC has affected your life.
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