| THIS MESSAGE BOARD IS NO LONGER ACTIVE.
TO SEE OUR ACTIVE MESSAGE BOARDS, PLEASE GO HERE |
| | Re: mytonia congenita.
Re: mytonia congenita.
[ Back to Messages
Posted by Kerry
on September 05, 2000 at 16:58:49:
In Reply to: Re: mytonia congenita. posted by clive on July 05, 2000 at 06:19:48:
I would like to hear from anyone who has Mytonia Congenita, I have never met anyone else with this condition.
I was diagnosed as a toddler, and have not seen a doctor for many years so am not on any medication. I have extremely large leg muscles which I try to hide. I find that I have to be careful when I sneeze otherwise my chest muscles seize up-very painful! I also fall a lot because I don't have the reactions to stop myself, and when I do fall people rush to help but don't understand that I need time for my muscles to 'catch up' before I can move again.
Please email me if you wish to correspond further about how MC has affected your life.
All times are GMT -7. The time now is 03:29 AM.
Site owned and operated by HealthBoards.comô
Do not copy or redistribute in any form!