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Re: alternative treatments
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Posted by Lex
on September 18, 2000 at 14:36:20:
In Reply to: Re: alternative treatments posted by scott on June 23, 1999 at 08:31:11:
: : : Does anybody know of any alternative methods for dealing with MD?
: : : I seem to be mildly suffering from LGMD. I have been diagnosed as having a dystrophic condition but
: : : no specifics were ever established. It is difficult for me to climb stairs and I have noticed some
: : : deterioration in my arms. But, my question is, what can I do about it? Would exercise help? Is weight
: : : lifting out of the question? What about yoga? Would any sort of diet make a difference? If I try to lose
: : : weight should I go low protein or high? I am awful confused.
I am currently awaiting results from a biopsy with LGMD being the strongly suspected diagnosis for my shoulder girdle atrophy. I have found that taking CQ-10, LYSINE and CARNITINE have greatly improved my situation. CQ-10 is an enzyme that is involved in getting oxygen to muscle tissue. CARNITINE is crucial in the transport of fatty acids through the muscle cell walls so that they can be used as fuel. If one has insufficient carnitine (and some research I found states that all people with any form of MD have reduced levels of carnitine) then one's muscles are getting "starved." It's crudely analagous to having enough gas, but having an insufficent hose to get the gas into the tanks. One can ingest CARNINITINE in red meats, or synthesize it in the liver chiefly from LYSINE along with other vitamins and minerals. However, if one has a liver imbalance, that itself can lead to carnitine deficiency (from what I've been researching). In any event, CQ-10 (100mg to 200mg per day)and LYSINE (500mg)have greatly improved my situation and I hope they can do you some good as well.
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