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Re: mytonia congenita.
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Posted by tyler
on October 26, 2000 at 22:57:31:
In Reply to: mytonia congenita. posted by willy on April 02, 2000 at 14:57:12:
: would like to correspond or meet people with myotonia congenita,please reply.
i've had mytonia for as long as i can remember. i am on medication but it does not help me. it is called dilantin . i havent been on the net long but i have aready found lots of cases of this disease. but not alot of treatments to relieve the symptoms. my discription of mytonia congenita is the same as all of you on the message board except i dont really have pain or inlarged muscles. i believe my form of this disease this called thomsen's disease. i would like to hear from anyone thank you.
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