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Posted by Sarah Weddle
on October 27, 2000 at 14:14:25:
In Reply to: pregnancy posted by michelle on October 14, 2000 at 11:53:11:
: i am a 29 year old woman married to a FSHD moderetly afected man. i am pregnant 6 weeks and am going to have a genetic test for the fitus in one month. in case it is FSHD positive i would like to know if there is any way to predict the sevirity of its involvment.my other qwestion is if there is any way to count on modern medicine to be able to prevent the symptoms or even to only eas them within 15 years (the time that my future child might start to hsow its symptoms). we are thinking of abortion in case the fitus is afected but we do need to know all the posibilities. if an expert person can ansure these qwestions i will thank him very much.
I understand your fear----I have been blessed with 4 outstanding boys throughout my years----one year ago because of some of my children developing shoulder problems, Dr's announced that two of my sons has FSHD. I don't think I've ever done more crying.....There is nothing like a mothers love. But as my doctor was counseling my 21 year old son about his getting married and wanting children---he profounding shifted his attention to me and asked me ///"Could you have ever had such a fulfilled life without all four of your children?"and then he looked at my son and ask "for your last 21 years, how would you rate your life?" That question not only dismissed my fears and self pitty, but my son and his to-be wife also. They became stronger and more appreciative of what so many take for granted. Life is precious. There is no perfection, but only blessings! Look deeper into the blessings. Enjoy your husband, enjoy the miracle of life and thank God that you were given a chance to breath! Good-luck
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