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Re: OPMD - Oculopharnygeal Muscular Dystropy

Re: OPMD - Oculopharnygeal Muscular Dystropy

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Posted by Mike Long on December 07, 2000 at 11:51:33:

In Reply to: OPMD - Oculopharnygeal Muscular Dystropy posted by Marlane on March 06, 2000 at 03:35:30:

: Are any of you suffering from the extremely rare OPMD? The USA has about 20,000 OPMD, Quebec has a ratio of 1:1,000. As you can see it's very high in Quebec. If you have OPMD and want to talk, drop me a line. We rare ones need all the support we can find.
: I was just diagnosed via DNA. I have the usual problems with droopy eyelids, chewing and swallowing, and larnyx difficulty in being heard. I do exercises for this but would be interested in what others have done with success or without success. Thanks.
My grandmother, mother and sister are now suffering with this disease and my doctor suspects i will be shortly. Email me lets talk!



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