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What are the short/long term effects of LGMD?

What are the short/long term effects of LGMD?

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Posted by AC on February 22, 2000 at 20:10:59:

I am 31 years old and was diagnosed with Limb-Girdle MD when I was 3 years. I had a fairly normal childhood and adolescence except that I was unable to walk up stairs and I started walking on my toes as a teenager. It seems as though my physical health has greatly declined in the last 7 !/2 years. When I was 23 I got my first manual wheelchair to go longer distances since walking was getting more difficult. 6 months later I fell and broke my knee and also again 1 year later so I felt it would probaly be a good idea to give up on walking after that. As a result of losing my independence and becoming totally reliant on a wheelchair I became bored and depressed and began eating twice as much as before. Between 1992 and 1996 I had went from 115 to 185 pounds with most of my weight being in my belly. I got so that I seldom left the house and my husband was having a very difficult time lifting me out of my chair. In 1996 I purchased a power wheelchair since I no longer had the upper arm strength to wheel my huge body around. In the last 4 years my condition has even slipped farther. I am no longer able to lift my fat arms more than 6 inches above my desk. I feel as though I have gotten much uglier as a result of this disease. My upper arms are 23"round and are almost completely flab and my belly is over 55" round and pure fat. I can't even feel my ribs anymore and have gained 75 pounds since 1996 and now weigh 263 pounds. I depend on my parents and husband for so many things that I once took for granted. I would like to know what are the short/long term effects of LGMD? Will I end up bedridden or in a nursing home before I'm 35? Also I would like to correspond with others that have LGMD.


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