| THIS MESSAGE BOARD IS NO LONGER ACTIVE.
TO SEE OUR ACTIVE MESSAGE BOARDS, PLEASE GO HERE |
| | Re: Living with fshd - OPMD
Re: Living with fshd - OPMD
[ Back to Messages
Posted by Marlane
on March 06, 2000 at 03:27:32:
In Reply to: Living with fshd posted by Missi on January 24, 2000 at 12:14:37:
For awhile my neuro thought I had FSHD so I researched it. It turned out that I have one that is a bit similar, Oculopharnygeal Muscular Dystrophy. Very rare in the US. Very common in Quebec. I'm newly diagnosed and have facial wasting among other problems with droopy eyelids, so I have half vision. I can't swallow well and choke alot. I'm going to see the MDA in Portland OR for an evaluation. Don't know what will come of that. I do tongue and mouth exercises and my swallowing has improved, but facial wasting is really scary.
All times are GMT -7. The time now is 06:09 PM.
Site owned and operated by HealthBoards.comô
Do not copy or redistribute in any form!