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Re: Living with fshd - OPMD
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Posted by Marlane
on March 06, 2000 at 03:27:32:
In Reply to: Living with fshd posted by Missi on January 24, 2000 at 12:14:37:
For awhile my neuro thought I had FSHD so I researched it. It turned out that I have one that is a bit similar, Oculopharnygeal Muscular Dystrophy. Very rare in the US. Very common in Quebec. I'm newly diagnosed and have facial wasting among other problems with droopy eyelids, so I have half vision. I can't swallow well and choke alot. I'm going to see the MDA in Portland OR for an evaluation. Don't know what will come of that. I do tongue and mouth exercises and my swallowing has improved, but facial wasting is really scary.
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