| THIS MESSAGE BOARD IS NO LONGER ACTIVE.
TO SEE OUR ACTIVE MESSAGE BOARDS, PLEASE GO HERE |
| | OPMD - Oculopharnygeal Muscular Dystropy
OPMD - Oculopharnygeal Muscular Dystropy
[ Back to Messages
Posted by Marlane
on March 06, 2000 at 03:35:30:
Are any of you suffering from the extremely rare OPMD? The USA has about 20,000 OPMD, Quebec has a ratio of 1:1,000. As you can see it's very high in Quebec. If you have OPMD and want to talk, drop me a line. We rare ones need all the support we can find.
I was just diagnosed via DNA. I have the usual problems with droopy eyelids, chewing and swallowing, and larnyx difficulty in being heard. I do exercises for this but would be interested in what others have done with success or without success. Thanks.
All times are GMT -7. The time now is 01:29 PM.
Site owned and operated by HealthBoards.comô
Do not copy or redistribute in any form!