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Re: What are the short/long term effects of LGMD?
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Posted by Elizabeth
on March 17, 2000 at 20:58:58:
In Reply to: What are the short/long term effects of LGMD? posted by AC on February 22, 2000 at 20:10:59:
hi there I also have LGMD.....I have had it all my life and I think I actually knew exactly what I had, when I was 13. I also have a lot more problems now. When I was 13 it was much easier to do anything. I can still walk but I fall sometimes pretty bad and really hurt my back for days. I have trouble picking up things from the floor. I have to use my hands to actually lift myself up from a bent over position. It gets really stressful somedays but I try to ignore my disability and try to look at what things I can do and I am good at. My husband helps me also. If we walk a lot I hold his arm for support, if I sit on the floor I get him to pick me up....etc...
Please do not give up hope or even think that you are going to be bed ridden....I know it is hard to not think that you are going to be bed ridden.......BUT TO TELL YOU THE TRUTH.....DON'T EVER GIVE UP HOPE!!!!! I SURE DON'T!!! Whatever you do...don't ever stop not doing something.... What I mean by that is don't just sit down and not move at all. Try to do some light excersises with your arms and legs. Get your husband to help you if you can't do it yourself. I know sometimes it is hard because believe me I know exactly how you feel. When you have to rely on people to do things for you.
If you would like to talk please give me your email address and I will talk to you some more about LGMD and other things.....I really hope that I helped at all and I hope that you never give up.
Take care of yourself.
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