I am 31 and have an extremely rare form of MD called Miyoshi Myopathy (MM). I am interested in learning anything about this disease, from any source. I have a few papers to read, but not much else. The onset was early adult and I have progressively gotten worse. I use a wheelchair when I am outdoors, but get around ok in my home.
My husband and I are expecting our first (and only) baby and we are not quite sure what to expect. If any disabled mothers, or fathers, have any advice, it would be welcomed.