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Miyoshi Distal Muscular Dystrophy--extremely rare--but I got it :-) anyone else?

Miyoshi Distal Muscular Dystrophy--extremely rare--but I got it :-) anyone else?

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Posted by Jodie on March 27, 2000 at 21:24:47:

I am 31 and have an extremely rare form of MD called Miyoshi Myopathy (MM). I am interested in
learning anything about this disease, from any source. I have a few papers to read, but not much else.
The onset was early adult and I have progressively gotten worse. I use a wheelchair when I am outdoors, but
get around ok in my home.

My husband and I are expecting our first (and only) baby and we are not quite sure what to expect. If any disabled
mothers, or fathers, have any advice, it would be welcomed.





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