| THIS MESSAGE BOARD IS NO LONGER ACTIVE.
TO SEE OUR ACTIVE MESSAGE BOARDS, PLEASE GO HERE |
| | Re: Living with fshd - OPMD
Re: Living with fshd - OPMD
[ Back to Messages
Posted by Missi
on April 09, 2000 at 11:45:39:
In Reply to: Re: Living with fshd - OPMD posted by Marlane on March 06, 2000 at 03:27:32:
: For awhile my neuro thought I had FSHD so I researched it. It turned out that I have one that is a bit similar, Oculopharnygeal Muscular Dystrophy. Very rare in the US. Very common in Quebec. I'm newly diagnosed and have facial wasting among other problems with droopy eyelids, so I have half vision. I can't swallow well and choke alot. I'm going to see the MDA in Portland OR for an evaluation. Don't know what will come of that. I do tongue and mouth exercises and my swallowing has improved, but facial wasting is really scary.
I hope this reply finds you in better health. Please post what your new doctor has said about your diagnosis and how well you are doing. Missi
All times are GMT -7. The time now is 04:04 AM.
Site owned and operated by HealthBoards.comô
Do not copy or redistribute in any form!