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Re: Living with fshd - OPMD

Re: Living with fshd - OPMD

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Posted by Missi on April 09, 2000 at 11:45:39:

In Reply to: Re: Living with fshd - OPMD posted by Marlane on March 06, 2000 at 03:27:32:

: For awhile my neuro thought I had FSHD so I researched it. It turned out that I have one that is a bit similar, Oculopharnygeal Muscular Dystrophy. Very rare in the US. Very common in Quebec. I'm newly diagnosed and have facial wasting among other problems with droopy eyelids, so I have half vision. I can't swallow well and choke alot. I'm going to see the MDA in Portland OR for an evaluation. Don't know what will come of that. I do tongue and mouth exercises and my swallowing has improved, but facial wasting is really scary.

Marlane,

I hope this reply finds you in better health. Please post what your new doctor has said about your diagnosis and how well you are doing. Missi




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