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Re: Miyoshi Distal Muscular Dystrophy--extremely rare--but I got it :-) anyone else?

Re: Miyoshi Distal Muscular Dystrophy--extremely rare--but I got it :-) anyone else?

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Posted by jere on April 12, 2000 at 21:10:15:

In Reply to: Miyoshi Distal Muscular Dystrophy--extremely rare--but I got it :-) anyone else? posted by Jodie on March 27, 2000 at 21:24:47:


:jodie
i was told that i had a rare type of md that at the time they called it a distal myopathy which has affected my legs then has started to affect my arms over the past few years. i am now thirty five i have haad to start using a power chair about a year ago as things have progressed where i cant use a man . chair without some help we try to do all the things that other couples do including trying to have a child hope this has helped.
jere



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