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| | My mother needs friends to talk to...she has LGMD.
My mother needs friends to talk to...she has LGMD.
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Posted by dee
on June 18, 2000 at 21:14:37:
I told my mother I would try to help her get connected with others who have lived as she with LGMD. She has had it since she was 14. Let's see, that's 49 years! My mother has never even spoken with another person with this disease and doesn't even have any friends outside of her immediate family! Please, any of you out there who would like to communicate with an angel, write her. Her name is Suzanne...email her at:
Thank you and God Bless,
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