| Message |
In Reply to: Daughter has dermatomyositis/possible juvenilemyositis posted by Pam on February 11, 1999 at 22:33:11:
> My daughter was diagnosed with myostis a week ago ,
> The doctor said dermatomyositis aka polymyositis , but
> i have found out they are not the same , however , juvenile
> myositis and dermatomyositis sound alot like each other .
> How can i tell which type she has ?? and does myositis go
> dormit for periods of time or is it awake all the time or dormit
> only when medicated ??
My daughter, Julia, also has Juvenile Dermatomyositis. She was
7 years old when she was diagnosed 2 years ago. She is doing
very well now. During most of that time, she has been on oral
Prednisone, currently at 9mg/day. She also gets Methotrexate
and Quinacrine.
You can read about Julia in an online Diary. See the link below.
There are also links to other myositis information and support
sites from the Diary.
Good luck,
Ralph
| Follow Ups |
| Post a Followup |