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Posted by Robin on June 15, 2000 at 21:58:07:

In Reply to: Re: CIDP Chronic inflammatory demyelinating polyradiculoneuropathy posted by Kathy on April 12, 1999 at 21:37:44:

The GBS Organization of the US has an active email support group and several of the members are parents of young children. You can subscribe at their Website, www.gbs.org Also, the GBS Organisation of the UK has several online pamphlets for parents of children with GBS and information about CIDP that might be of use. www.gbs.org.uk Sincerely, Robin


: : I have a 4yr. old girl that has CIDP. She has gone through her second treatment of ivig. She doesn't seem to be getting better so, her Doctor has started ivig treatments every month for the next six months. Does anyone know of a support group for CIDP patients and relatives or where I can get information on children that have CIDP. I really need to know how long she is going to be going through these treatments! All the information that I have on CIDP is on adults only! PLEASE HELP!!


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